After years of puzzling symptoms and signs, and no help in sight, Dr. Google led me to a forum for people with similarly confusing issues. Since there was no treatment, and no cure, I decided not to look into it any further.
Five years later, we had a talented and supportive researcher, Dr. Karen Herbst. In looking beyond the surface, she uncovered some surprising findings. Finally, we are beginning to understand Adiposis Dolorosa. Finally, we have steps to take to slow this progressive disease.
We are no longer orphans.
